Family

Hey there guys, sorry I haven’t written in a while, but ever since I had my first Remicade I have been back to school!!! Not only that but I’m moving so I have to pack. I know, right? Crazy!

So, like I had already mentioned in earlier posts, I have a pretty big family, and I want to tell you a little about them.

We will start off with my biological father. His name is Juliano, but I call him simply, “my father”. He is from Brazil. Him and my mom met when they were both teenagers. Mommy got pregnant at 15, and turned 16 one month before I was born. They dated all the way until I was 2, and then they broke up. He ended up going back to Brazil and not keeping in contact, so I don’t remember him, and didn’t get to know him at all. I always wonder if he still thinks about me, if he loves me, if he wishes he would have done things differently, and if he regrets not being part of my life, or not. But, I don’t know if I will ever know any of those things.

Let’s move on to a happier note, I probably have the coolest uncles ever, my mom’s brothers. Fabio, is 8 years older than me and Sebastian is only 5 days younger than me. I know you are probably wondering how that could be, and I will explain. My mom and grandmother got pregnant at the same time. My grandmother got pregnant with my mom when she was only 16 years old, so she isn’t an old grandma, and she had just divorced my granddaddy and gotten remarried. My mom was 15, and my grandmother, 32 at the time they got pregnant. I was born 5 days before Sebastian. Later on, when I was 6, my grandmother had another baby, so I have a aunt, Sabrina, who is 6 years younger than me!!!

Fabio is the coolest uncle in the world. I love being around him because no matter the situation he can always make me laugh, with all of his funny faces. There was this one time when he was at my house, and I was being silly, so I grabbed onto his leg as he got up and started to walk away, so he fell and kind of sat on me when he went down!! Or when he tricked me into thinking he could do this magic trick involving water and a penny, just to splash me with water when I opened my eyes.  I love being around him, because he always makes things better, sometimes by loving and talking to me about things, and sometimes just because he makes the situation just plain out hilarious.

Then there’s Sebastian who was my very first friend, who grew up with me, and to this day is my best friend. Me and him went to the same school at one point, shared the same friends, we always enjoy playing together. Yeah, sometimes he can get on my last nerve, but at the same time he can be so nice and sweet, like this one time when he gave me a little box of chocolates for no reason. Not to mention, he is funny too. Can you believe we were walking to the bus stop one day he did the Michael Jackson split i the middle of the road? Yep, that’s right the splits!!!

Sabrina one of the cutest little girls you will ever meet. Her singing is as bad as she is sweet. Lol. No, really she is a really bad singer though. You know when you are in the car you can hear this off beat singing in the background? That would be her. You turn around to look at her, and she is also dancing, rocking out to the song that is playing. Anytime I go over to their house, all she ever wants to play is hide and seek, or play dough. I love playing with her though, she actually enjoy the time she gets to spend with me, she says I am the only one who really ever plays with her. Sabrina is amazing I love her so much.

My granddaddy, sadly, passed away a little over a year after I was born. I didn’t get to know him, but I have seen pictures of him holding me, and I can tell how much he loved me and how happy he was to be around me. I will find those pictures and post them one day.

After my mom and my father broke up, she met Dustin, the man I refer to as “daddy”. He was the one who took care of me for most of my life. He taught me most of the things I know, he played with me, took me to the park, we watched movies together, played video games together, he took care of me when I was sick, he loved me even though he wasn’t my real father. My mom and him were together for quite a few years. His family was my family. Meemah was my grandmother, the best grandmother I could have asked for, she painted my nails, took me to the movies, straightened my hair, and sometimes burnt my ears in the process, lol, curled my hair, she loved me and cared for me, like a grandmother should. We watched Twilight and Harry Potter together, and we loved to crush on David Archuletta and Taylor Lautner. I had an uncle too, Dylan. He always picked on me, and teased me, but he loved and cared for me too. He was funny, and liked to walk around with no shirt on, I remember. Mawmaw was his grandmother and she was a sweet lady who loved me and treated me with care. All she ever drank was Mountain Dew, I will always remember that. Granddad was a caring man who always made little jokes and drove this old truck around, every morning when I woke up when I lived with them, he was sitting by the table, listening to old songs and doing crossword puzzles or word searches, or something like that.. Unfortunately since my mom and daddy broke up, I haven’t gotten to see them. My mom tells me they probably don’t live in town anymore, or maybe they haven’t gotten my calls and voicemails, but I don’t know if I believe it anymore. All I know is, I have tried to talk to them, and they don’t seem to want to talk to me, which sucks, I still consider them part of my family.

Then there’s Shawn, my “dad”. He has a different way of loving me. He cares, he disciplines me, teaches me right from wrong, helps me with homework, school projects, he came to see me in the hospital everyday, he would have lunch or dinner with me there when mommy was at work and couldn’t be there. He was there when we got my diagnosis, when I had to have my first Remicade, when I was dropped off at camp. He was there to comfort me from it all at home, he holds me, cuddles me, plays with me, picks on me (ALL THE TIME), makes me laugh. I can lean on him when I am sad, and I can also find a smile and a silly joke when I need to be cheered up. I am also thankful for him, because without him, I wouldn’t have my little brother and sister. It is supposed to snow in Georgia today, and Shawn is crazy about snow! I can’t wait to throw snowballs at him!

I love my whole family no matter what the situation. They are always there for me especially my mom and dad !!

“New Year, New Me”

Hey everyone! I hope you are all doing ok! I have heard adults say “New Year, New Me” for years now every time a new one starts. That expression could not have been more true for me this year. On January 6th, I had to have my second endoscopy and colonoscopy, and that was also when learned I had to say goodbye to pills and say hello to IV infusion! That’s right, yesterday was my first day having to take Remicade.

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That’s not all though! So you know how when you are sick, you gotta start taking new medicine if old ones stop working? Yeah, that’s what happened with me, except my medicine was not working since day ONE!!!
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Feelings

I am feeling a bit gloomy today. In life, there are ups and downs, whether you got a disease or not.

Living with Ulcerative Colitis isn’t easy, you have to deal with lots of needles, pills, doctor’s offices, and many different emotions. Ever since I got diagnosed, I have been missing a lot of school, missed a lot of time at school even when I am there, because I had to use the bathroom, having to wear masks. Of course people are gonna ask about it and want to know more about you, because they think you are dying. Even if that’s not at all what’s happening.

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Normal Life

Hey again, guys and gals! All I have ever talked about on this blog so far, is living with Ulcertive Colitis. So, I decided this time, that instead I am gonna talk about my life when I feel like my OLD self, like the minutes I don’t spend having to take medicine, or when we are not planning for another colonoscopy, when I don’t feel like I have to use the bathroom, and when people don’t make weird faces at me for using the handicap restroom.

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What’s New

Hey there guys! I hope you all have been doing good. I am back with an update on me and my new found IBD life.

For 3 months after my diagnose, which came on April 8th, 2015, I was put on some steroids. Prednisone. 40mg of it a day. I went from being the skinniest girl, to a female version of Theodore from Alvin and the Chipmunks. No, seriously, check it out.

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